Thursday, July 26, 2012
Baby Sister's Hat Set By Juskj
Please support Baby Sister's Song: EA/TEF Walk-A-Thon by purchasing a Baby Sister's Hat set by Juskj. For each Baby Sister's Hat set sold, Juskj will donate $5 to Baby Sister's Song: EA/TEF Awareness. Check out the link below.
Tuesday, July 24, 2012
Baby Sister Needs Your Support
We are very grateful that Baby Sister is a EA/TEF Survivor! Yet her song continues... and her challenges have continued causing her to need more specialized medical care. Since October 2011, Baby Sister has been hospitalized frequently with aspiration pneumonia and has been on 19 different courses of antibiotics and steroids!!! She is either going on a course of antibiotics and steroids or coming off of a course. While our family is blessed to have insurance, we have incurred significant out of pocket expenses, and are faced with an even greater expense to get Baby Sister the help that she really needs.
In August, we will be taking Baby Sister to Cincinnati Children's Hospital Medical Center for an initial consultation and evaluation that consists of a week's worth of testing. Baby Sister will be evaluated by an elite team of doctors that are experienced in working with patients with difficult esophageal disorders. After the initial week, we will be given a treatment plan for Baby Sister and will need to return to Cincinnati Children's Hospital for treatment. We are excited about the possibilities, and prayerful that she will finally be medically stable and can live a more normal life.
In August, we will be taking Baby Sister to Cincinnati Children's Hospital Medical Center for an initial consultation and evaluation that consists of a week's worth of testing. Baby Sister will be evaluated by an elite team of doctors that are experienced in working with patients with difficult esophageal disorders. After the initial week, we will be given a treatment plan for Baby Sister and will need to return to Cincinnati Children's Hospital for treatment. We are excited about the possibilities, and prayerful that she will finally be medically stable and can live a more normal life.
Therefore, we are hosting Baby Sister's EA:TEF Walk-A-Thon, selling speciality items, and promoting other events to raise awareness about Esophageal Atresia and Tracheoesophageal Fistula; and to raise money to off-set anticipated expenses. Your contribution and support will have a lasting impact on a well deserving life... Baby Sister.
For more information on how to help, please visit http://ShadeNaturals.com/Baby-Sisters-Song/.
Many Thanks in Advance!!!
We are getting down to the wire... Only give days until Baby Sister's Song Walk-A-Thon! Make sure you register athttp://ShadeNaturals.com/Baby-Sisters-Song-Walk-A-Thon/. Thank you!
Saturday, July 21, 2012
Help Baby Sister Collect Hearts
Baby Sister's Hearts
Baby Sister is going to have to go through an awful lot over the next few months. She’ll be traveling, meeting new people, doctors, nurses, and hopefully some nice new friends. It’s going to take a lot of courage to go through surgery, heal, and get through this new phase with a smile. What Baby Sister needs now more than ever is Faith and Courage. Will you pray with us that God will give her the Heart to go through it all? Please show your support for Baby Sister by helping her to find her Hearts. The more hearts she receives, the more she will know that you are praying for her and helping to support her in this very life changing experience. You may help her to collect as manyhearts as you like. God bless you and we Thank You for your love, prayers, and support in advance!
Purchase the Pink Heart for just $5.00 and the Blue Heart for only $1.00 and have your name and heart posted right here on this page within 24-48 hours showing that you support EA/TEF Awareness. Your Heart will encourage Baby Sister and your Donations will help get her to Cincinnati and help to further support the Cincinnati Children’s Hospital in their effort to reverse the effects of the EA-TEF birth defect.
Friday, July 20, 2012
It’s Just An Esophagus
What a story! This is the kind of result we are expecting for Eryn. She has been through so much, and it seems that the medical doctor’s we have encountered just don’t have the medical experience to help her. We’ve been seen by the most elite hospitals and doctor’s in our area, and we keep coming back to the same problem. It doesn’t seem like it should be a BIG problem, It’s Just An Esophagus, but it is. Food MUST get into the stomach to fuel the body, and when it gets into the lungs, it creates a life or death situation… period. Eryn has had food in her lungs way to often. She has endured lots of pneumonia and upper respiratory infections, and it’s like we are play Russian Roulette with her life. The game has to STOP, which is why we are taking her to Cincinnati Children’s Hospital.
Sunday, July 15, 2012
Saturday, July 7, 2012
Friday, July 6, 2012
Pulmonary Outcome of Esophageal Atresia
Pulmonary Outcome of Esophageal Atresia
Children with esophageal atresia (EA) are now reaching adulthood in large numbers. Many patients, however, continue having functional problems with their respiratory system after the initial postoperative period, and it appears important that follow-up for these children focus not only on gastrointestinal pathologic condition but also on respiratory pathologic condition. There are now several series reporting long-term follow-up in adolescents or young adults after repair of EA (1–4), and reviews have been published recently (5,6). The objectives of the present review are as follows: to summarize the long-term pulmonary outcome of children with EA, in terms of symptoms and respiratory function, and to focus on the underlying mechanisms contributing to the occurrence of prolonged respiratory complications.
Click the link to read more!
Children with esophageal atresia (EA) are now reaching adulthood in large numbers. Many patients, however, continue having functional problems with their respiratory system after the initial postoperative period, and it appears important that follow-up for these children focus not only on gastrointestinal pathologic condition but also on respiratory pathologic condition. There are now several series reporting long-term follow-up in adolescents or young adults after repair of EA (1–4), and reviews have been published recently (5,6). The objectives of the present review are as follows: to summarize the long-term pulmonary outcome of children with EA, in terms of symptoms and respiratory function, and to focus on the underlying mechanisms contributing to the occurrence of prolonged respiratory complications.
Click the link to read more!
Thursday, July 5, 2012
Wednesday, July 4, 2012
Sunday, July 1, 2012
An Adult with Esophageal Atresia with a Tracheoesophageal Fistula
Meet Becky... Becky's Story -- An Adult with EA/TEF. Like Baby Sister, she was born with Esophageal Atresia with a Tracheoesophageal Fistula. She has gone through many medical experiences, and even now, continues to have medical issues associated with EA/TEF.
While she has managed to carve out a wonderful life for herself, she has had to endure lots of medical problems and even lost her right lung in the process. This birth defect is serious, and its complications can be devastating and costly. Becky is one of the lucky ones, but a lot more RESEARCH and information is needed to improve the quality of care for each of these very special people.
Please join us in our efforts to heighten awareness about this birth defect and raise funds for Baby Sister to go to Cincinnati Children's Hospital Medical Center in August; so she can receive evaluation and treatment for her condition.
While she has managed to carve out a wonderful life for herself, she has had to endure lots of medical problems and even lost her right lung in the process. This birth defect is serious, and its complications can be devastating and costly. Becky is one of the lucky ones, but a lot more RESEARCH and information is needed to improve the quality of care for each of these very special people.
Please join us in our efforts to heighten awareness about this birth defect and raise funds for Baby Sister to go to Cincinnati Children's Hospital Medical Center in August; so she can receive evaluation and treatment for her condition.
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